ABOUT A-LiNK
Our shared purpose is to improve care, outcomes, and quality of life for children and young adults living with autoimmune liver disease.
A-LiNK, the Autoimmune Liver Disease Network for Kids, is a group of like-minded physicians, researchers, improvement experts, and patients/families working together to make life better for children with autoimmune hepatitis (AIH), primary sclerosing cholangitis (PSC), and autoimmune sclerosing cholangitis (PSC & AIH) .
Together, we are tackling important unmet needs. We listen to one another and learn from our experiences. We focus on improving outcomes that matter the most to patients and families. We generate data to better understand how kids with Autoimmune Liver Disease are doing. And we work collaboratively to provide the best care to every child at every center.
We are proud of the work we have accomplished together and excited by what we have yet to achieve.
What is A-LiNK?
Mission & vision
Our Mission
Collaboratively improve the outcomes that matter most to children, teenagers, and young adults with Autoimmune Liver Disease and their families.
Our Values
Foster a dynamic community of patients, caregivers, researchers, clinicians, and care teams.
Generate data to identify gaps in care and employ innovative solutions to close them.
Ensure every child with Autoimmune Liver Disease receives high-quality, evidence-driven care.
In Collaboration With:
A-LiNK is partnered with ImproveCareNow - a well-established learning health network of over 100 centers who are transforming care for pediatric Inflammatory Bowel Disease.
All A-LiNK centers are actively engaged sites with ImproveCareNow.