Our Work
A-LiNK Encompasses:
Collaboration with patients and families through A-LiNK Connections
Implementing quality improvement strategies at A-LiNK sites
Support from ICN processes and leadership
Dedicated experts in quality improvement
Retrospective studies to determine historical outcomes
Prospective study to optimize patient care
Our main goal is to improve outcomes for children with AILD. We do this through quality improvement initiatives at A-LiNK centers and across the network.
We prioritize improvement efforts at A-LiNK sites. We maintain Master Patient Lists to keep track of patients. We utilize a Pre-Visit Planning Tool to tailor clinic visits to patients’ needs. We perform PDSA (Plan-Do-Study-Act) cycles to optimize care.
Quality Improvement Initiatives
The patient and family community is integral in all aspects of our work. A-LiNK Connections is a dynamic community and shapes A-LiNK’s priorities. Any child with AILD or their family can get involved.
A-LiNK Connections: Patient & Family Engagement
We collaborate in focused working groups on disease-specific needs, refining our ability to assess patient outcomes, and creating Model Care Guidelines to define best practice for care of children with AILD and their families. This provides a practical framework for evidence-based and patient-centered care, the first of its kind for pediatric AIH, PSC, & AIH.
Working Groups
Dedicated ImproveCareNow support from leadership, Quality Improvement Specialists, Analysts, and Project Managers has been foundational in A-LiNK’s improvement efforts and growth.
ICN Leadership. QI Specialists, Project Management
Multicenter Retrospective Study: Establish Baseline Outcomes
Together, we are advancing knowledge in pediatric AILD through a multicenter retrospective cohort study. With over 250 patients included from 12 A-LiNK centers, this serves as the basis for implementing strategies to improve outcomes in AILD.
A-LiNK is utilizing a multicenter prospective registry to monitor and improve key outcomes. With over 280+ patients with AILD enrolled, we review monthly reports on how patients at A-LiNK centers are doing.
Multicenter Prospective Registry: Improve Outcomes
Find the A-LiNK registry at ClinicalTrials.gov
