A-LiNK Connections

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Connecting families across A-LiNK to enable shared progress & involvement of patients & families as partners.

What is A-LiNK Connections?

A-LiNK Connections is a community of patients and families who are committed to enhancing the quality of life for children, young adults, and their families who live with PSC (Primary Sclerosing Cholangitis), AIH (Autoimmune Hepatitis), & ASC (Autoimmune Sclerosing Cholangitis, combines features of both PSC & AIH).

Together, we share experiences, exchange knowledge, and partner with researchers and clinicians to advance care and create a future filled with hope. 

A-LiNK Connection’s Mission

A-LiNK Connection’s mission is to unite patients, families, clinicians & researchers to collaboratively further research & improve clinical outcomes with the understanding & consideration of patient experiences. Through this, A-LiNK Connections aims to provide meaningful connections & resources to pediatric AILD patients & families by cultivating & sustaining a platform to advocate for ourselves and others & develop accessible, patient-centered resources.

A-LiNK Connection’s Core Values

Diagram illustrating core values of collaboration, equity, community, transparency, compassion, and empowerment with icons representing teamwork, diversity, communication, honesty, kindness, and support.

A-LiNK Connection’s Vision

A-LiNK Connections seeks to provide a supportive space with accessibility to patient-centered resources to increase awareness and knowledge of pediatric autoimmune liver disease (AILD). We seek to establish standardized, reliable & consistent care to improve outcomes for AILD patients.

What We Do

Overlapping circles with the words 'Collaborate, Advocate, Support, Educate' inside each circle, representing a concept of 'CASE'.

COLLABORATE

We create Patient & Family Resources.

View Our Resources

ADVOCATE

We partner in Research & Improvement.

View Our Work

SUPPORT

We offer Support Groups.

Join a Group

EDUCATE

We host Monthly Project & Education Meetings.

Tune into a Meeting

Ways to Get Involved

Get Involved
LOGO for A-LiNK CONNECTIONS: Parent & Patient Community, featuring a circular graphic element and text.

There are many ways for patients and caregivers to connect with A-LiNK, share their experiences, and help shape work that supports families affected by autoimmune liver disease.

  • Join a monthly project & education meeting

  • Attend a caregiver support group

  • Attend a patient support call

  • Subscribe to the newsletter

  • Help with projects

  • Connect with other families

Whether you want to participate regularly, contribute to a specific project, share your perspective, or simply learn more, we would love to hear from you.

Complete the form below to tell us how you would like to get involved. A member of the A-LiNK Connections team will follow up with more information and relevant meeting links or opportunities.