Get Involved

Help shape the future of care for children and young adults with autoimmune liver disease.

A-LiNK brings together patients, caregivers, healthcare providers, researchers, and centers with one shared goal: improving care and quality of life for children, teens, young adults, and families affected by autoimmune liver diseases.

Patients & Caregivers

Connect with others.

Share your experience.

Help shape the work.

A-LiNK Connections is the patient and caregiver community within A-LiNK. It was created to make sure patients, parents, caregivers, and families have a voice in the work to improve autoimmune liver disease care.

Through A-LiNK Connections, patients and caregivers can connect with others, participate in meetings and support opportunities, help create resources, and share feedback that guides education, research, advocacy, and quality improvement.

You can:

  • Join a monthly project & education meeting

  • Attend a caregiver support group

  • Attend a patient support call

  • Subscribe to the newsletter

  • Help with projects

  • Connect with other families

Healthcare Providers & Centers

Collaborate across centers.

Improve care.

Learn together.

A-LiNK is a collaborative learning health network focused on improving care and outcomes for children and young adults with autoimmune liver diseases.

Healthcare providers and centers play an essential role by contributing clinical expertise, participating in quality improvement, sharing best practices, supporting patient and family engagement, and helping strengthen care across the network.

You can:

  • Learn from other pediatric liver centers caring for similar patients

  • Share tools, workflows, resources, and lessons learned

  • Collaborate on quality improvement projects

  • Participate in research and data-driven learning

  • Strengthen patient and family education

  • Contribute to national conversations about pediatric autoimmune liver disease

Not sure where to start?

Tell us a little about who you are and how you would like to get involved, and we’ll help connect you with the right next step.