Benefits of Becoming an A-LiNK Center
Access to a prospective registry of over 280+ children and young adults with AILD as well as monthly center and network reports on key AILD outcomes.
Resources to provide consistent reliable care for patients including Pre-Visit Planning tool and Model Care Guidelines. Support from A-LiNK centers on how to implement these into clinical practice.
Quality improvement training and support to implement best care practices at your center and troubleshoot challenges in care delivery.
Collaboration with a vital parent and patient community through A-LiNK Connections to learn first-hand the challenges of AILD and the opportunities for co-production of tools, resources, and care management strategies.
Opportunity to engage with colleagues, patients, and parents to identify ways to improve outcomes in pediatric AILD. Network with clinical experts and research scientists to advance knowledge and care in AILD.
Become an A-LiNK Center
Help improve care for children and young adults with autoimmune liver disease
A-LiNK is a collaborative learning health network focused on improving care and outcomes for children and young adults living with autoimmune liver diseases, including autoimmune hepatitis, primary sclerosing cholangitis, and autoimmune sclerosing cholangitis.
By joining the network, centers become part of a growing community of clinicians, researchers, patients, and families working together to share knowledge, improve care, and accelerate learning across institutions.
Interested in joining the A-LiNK Network? Contact us to start the conversation.
Why should your center join A-LiNK?
Autoimmune liver diseases are rare, complex, and often unpredictable. No single center sees enough patients to answer every question alone.
A-LiNK brings pediatric liver centers together to learn from one another, share best practices, and improve care for children and young adults living with autoimmune liver disease. By joining the network, your center becomes part of a collaborative community working to advance clinical care, research, quality improvement, and patient and family support.
Participating centers have opportunities to:
Learn from other pediatric liver centers caring for similar patients
Share tools, workflows, resources, and lessons learned
Collaborate on quality improvement projects
Participate in research and data-driven learning
Strengthen patient and family education
Contribute to national conversations about pediatric autoimmune liver disease